CMT Support Network was founded by a family personally affected by Charcot-Marie-Tooth disease, specifically CMT type 4C (CMT4C). When our son Jack was diagnosed in 2025, we were overwhelmed by the complexity of the condition, the lack of accessible information, and the emotional weight of the unknown. Like many families, we quickly realized how isolating and confusing the journey can feel. That’s why we built this space—to bring clarity, connection, and comfort to others walking a similar path.

Our mission is simple: to offer support, answers, and community for everyone impacted by CMT, whether you’re a patient, a parent, a caregiver, or simply someone searching for understanding. We aim to bridge the gap between clinical information and real-life experience through shared stories, expert-curated resources, and a supportive environment grounded in empathy.

We’re especially committed to highlighting Jack’s journey—not as a case study, but as a courageous and evolving story that might resonate with other children and families navigating rare disease diagnoses. Through our YouTube channel and community features, we hope to shed light on the realities of living with CMT while uplifting others through honest conversation and shared strength.

Whether you’re newly diagnosed or years into this journey, you are not alone. Welcome to the CMT Support Network—we’re so glad you’re here.

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